Brain on Fire
“Do you feel that?” I asked my friend, Sheldon, as we were walking side by side to the school library.
I touched his cheek with the back side of my left hand. Hoping that he also felt the slight tingle that I was silently questioning to myself.
”Uh, yeah.” He responded as if I was stupid or something. Even at ten years old, I remember thinking how idiotic it must sound to have me ask that question. Obviously he could not feel what was going on inside my body.
This memory of asking Sheldon if he could feel my hand is the first memory of my epilepsy disorder. At ten years old, it was still in its infancy and I could only feel a slight tingle in my left hand. This feeling came and went on occasion, but progressed into a life altering and
In 2019 and 2020 I underwent corrective brain surgery to locate and remove a piece of my brain that was not functioning correctly. It’s difficult to summarize 20 years in a few lines of text, but at the age of 10, I was diagnosed with an epilepsy disorder. After 20 years the symptoms became dreadfully worse despite the increase in medication and breakthrough medical procedures. Finally, at the age of 32 years, my doctor suggests to participate in a new procedure that has the potential to put and end to the seizures once and for all.
I documented this life changing experience in the hospital and rehabilitation center with a 35mm camera. I took over 200 photographs and and made a few notes and drawings.